Join Us On Facebook
“Private” Facebook HLRCC Group
It is important that you understand that membership of this Facebook Group is controlled by administrators in order to protect your privacy. “Private” means that all posts within the group can only be seen by group members, and the names of all of its members are not externally visible.
Admittance requires you to submit relevant information about your reasons for wishing to join the group. This information will be treated as strictly confidential
To join the HLRCC Knowledge Saves Group please visit https://www.facebook.com/groups/hlrcc/
Please complete the mandatory questions for your request to be accepted by the administration.
You will find the group is very welcoming and friendly with over 1,000 members around the world.
So please join us if you or a family member has HLRCC, FH Deficient RCC, or Fumarase Deficiency.
The Facebook platform has some limitations for our needs so we are also strongly advising people to join the HLRCC Community on Smart Patients