HLRCC & Kidney Cancer News & Blog
News: the HLRCC Foundation became an affiliate partner of the Kidney Cancer Association.

NEJM Trial: Bevacizumab + Erlotinib
A 10-year NIH trial found that most people with advanced HLRCC kidney cancer saw their tumors shrink on bevacizumab plus erlotinib.
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My Battle with Rare Kidney Cancer
My kidney cancer diagnosis came at the very young age of 27 in the year 2002.
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HLRCC Purine Pathway
The build-up of fumarate due to the loss of fumarate hydratase (FH) can lead to cellular changes and cause a severe form of kidney cancer called hereditary leiomyomatosis and renal cell cancer (HLRCC).
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Knowledge is Power
My name is Cheryl. I am 55 years old, and I have Hereditary Leiomyomatosis and Renal Cell Cancer (HLRCC).
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How Common are Uterine Fibroids?
Uterine leiomyomas, also known as fibroids, are a common yet poorly studied condition that primarily affects women during their reproductive years.
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Are Uterine Fibroids Genetic?
Many people are unaware of a genetic condition called Hereditary Leiomyomatosis and Renal Cell Cancer (HLRCC), which is linked to the early onset of symptomatic uterine fibroids in young women.
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Advanced Clear-Cell RCC: Triplet Therapy
A study published in The New England Journal of Medicine suggests that combining the targeted kinase inhibitor cabozantinib with the immunotherapy drugs nivolumab and ipilimumab may slow the progression of advanced renal cell carcinoma in patients who have not received previous treatment.
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Cabozantinib + Nivolumab (JCO 2022)
A recent study investigated the effectiveness of a combination treatment using cabozantinib and nivolumab for advanced, non clear cell kidney cancer.
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Power of Persistence
In the spring of 2022, my then 23-year-old nephew was experiencing pains in the side of his abdomen.
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A Boxing Champ’s Biggest Fight
I was born in Iran in September 1991, and I have been living in Scotland for over 15 years.
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UCLA Launches Unique Tumor Repository
They hope to use this information to increase their knowledge of HLRCC which could possibly lead to better prevention strategies, early diagnosis, and more effective treatment in the future.
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HLRCC Science YouTube Channel
These lectures are all uploaded to the YouTube Channel HLRCC Science
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HLRCC Foundation Joins KCA as Affiliate
We are pleased to announce that we are now an affiliate partner with the Kidney Cancer Association!
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