HLRCC & Kidney Cancer News & Blog
A New Standard of Hope: What the NEJM Bevacizumab and Erlotinib Trial Means for HLRCC Kidney Cancer
A 10-year NIH trial found that most people with advanced HLRCC kidney cancer saw their tumors shrink on bevacizumab plus erlotinib. Here’s […]
My Battle with Rare Kidney Cancer and the Power of Self-Advocacy
My Battle with Rare Kidney Cancer and the Power of Self-Advocacy My kidney cancer diagnosis came at the very young age of […]
HLRCC Purine Pathway
Targeting Purine Pathway in HLRCC May Be Effective – The build-up of fumarate due to the loss of fumarate hydratase (FH) can […]
Knowledge is Power
Underneath the Skin: A Family’s Battle with HLRCC Author: Dr. Cheryl Bahar My name is Cheryl. I am 55 years old, and […]
How Common are Uterine Fibroids?
How Common are Uterine Fibroids? ARE THEY HEREDITARY? Uterine leiomyomas, also known as fibroids, are a common yet poorly studied condition that […]
Are Uterine Fibroids Genetic?
Are uterine Fibroids Genetic? Many people are unaware of a genetic condition called Hereditary Leiomyomatosis and Renal Cell Cancer (HLRCC), which is […]
Triplet therapy in advanced kidney cancer – NEJM
Triplet Therapy in Advanced Kidney Cancer A study published in The New England Journal of Medicine suggests that combining the targeted kinase […]
Cabozantinib Plus Nivolumab in Advanced Non–Clear Cell Renal Cell Carcinoma
Cabozantinib Plus Nivolumab demonstrate activity in metastatic Non–Clear Cell Renal Cell Carcinoma A recent study investigated the effectiveness of a combination treatment […]
10 year survivor
10 year survivor of metastatic kidney cancer Listen to Alex Dinh’s story on the ‘Best Life after Cancer’ Podcast here. Transcript from […]
Power of Persistence
An Aunt’s Search for Answers in Her Nephew’s Battle with HLRCC and Kidney Cancer Author: Alexandra Frederikke In the spring of 2022, […]
A Boxing Champ’s Biggest Fight
A Boxing Champ’s Biggest fight with HLRCC I was born in Iran in September 1991, and I have been living in Scotland […]