Privacy Policy

Information provided on the website is designed to support, not replace, the relationship that exists between a patient or site visitor and his or her physician.

The website does not accept advertising. It is supported solely by donations from people with HLRCC, their friends, their families and supporters, and physicians and researchers interested in HLRCC.

Personal details that you provide to the HLRCC Foundation, including e-mail addresses, are kept entirely confidential. These details are shared within this organization among staff and volunteers for the purpose of providing service to you, but are never shared with, rented or sold to other organizations. All staff and volunteers have made confidentiality agreements to protect your information. To verify your information or send corrections, please contact us at admin@hlrcc.org

Information you submit to us voluntarily through the website is stored on our secure server using SSL encryption technology.

The website is not set up to track, collect or distribute personal information not entered by visitors. Our site logs do generate certain kinds of non-identifying site usage data, such as the number of hits and visits to our sites. This information is used for internal purposes by technical support staff to provide better services to the public and may also be provided to others, but again, the statistics contain no personal information and cannot be used to gather such information.

The website also recognizes the online site where a visitor searched to find a subject which brought them to the HLRCC Foundation website, but we cannot identify the visitor or the visitor's address.

Site information is used to help us serve these search sites with the correct information about our material. No personal information is collected

A cookie is a small amount of data that is sent to your browser from a Web server and stored on your computer's hard drive. HLRCC Foundation does not use cookies for advertising or to track you across other websites. We do not generate personal data, do not read personal data from your machine and do not store any personal information other than what you voluntarily submit to us.

Page-view counter. To show our "Support the Foundation" message only once, our website keeps two small values in your browser's local storage: a count of some of the pages you have viewed on hlrcc.org, and the date the message was last shown. They contain no personal information, are not sent to us or to anyone else, and are used for nothing else. After 30 days the count starts over. You can delete them at any time by clearing your browser's site data for hlrcc.org.

The links included within the service may let you leave this site. The linked sites are not under the control of HLRCC Foundation and HLRCC Foundation is not responsible for the contents of any linked site, or any link contained in a linked site, or any changes or updates to such sites. These links are provided as a convenience only, and the inclusion of any link does not imply endorsement by HLRCC Foundation of the site or any association with their operators.

The HLRCC Foundation is a nonprofit organization dedicated to patient advocacy, awareness and research in Hereditary Leiomyomatosis & Renal Cell Cancer.